Monday, August 12, 2013

fitting in

You know what does not exist?

A support organization for those with Trisomy 16q24.1 to 24.3.

Millie is one of a kind. There is no documented case of another human being with the exact same genetic condition -- her so-called "problem" -- and very, very few with a near-similar makeup (and they have markedly different presentations).

Sometimes, often, I feel like we're on an island.

But last week, we got to, kind of, feel like part of a larger group.

Thursday marked Dairy Queen Miracle Treat Day, when DQ gave $1 from every Blizzard treat to Children's Miracle Network Hospital, of which Gillette Children's Specialty Healthcare is a member (Gillette's is where Millie goes to check in with her neurologist and have some of her more specialized testing done).

So, I picked the girls up after daycare and we drove 15 miles to the nearest participating DQ.

And the girls had a treat; Millie's first DQ treat.




- Bethany :)

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