You know what does not exist?
A support organization for those with Trisomy 16q24.1 to 24.3.
Millie is one of a kind. There is no documented case of another human being with the exact same genetic condition -- her so-called "problem" -- and very, very few with a near-similar makeup (and they have markedly different presentations).
Sometimes, often, I feel like we're on an island.
But last week, we got to, kind of, feel like part of a larger group.
Thursday marked Dairy Queen Miracle Treat Day, when DQ gave $1 from every Blizzard treat to Children's Miracle Network Hospital, of which Gillette Children's Specialty Healthcare is a member (Gillette's is where Millie goes to check in with her neurologist and have some of her more specialized testing done).
So, I picked the girls up after daycare and we drove 15 miles to the nearest participating DQ.
And the girls had a treat; Millie's first DQ treat.
- Bethany :)